Some families are actively discouraged from seeking a diagnosis – either due to lack of knowledge by some in the medical and educational communities, and also due to the stigma too often attached to a diagnosis.  FASD presents a complex profile and people often have many co-related conditions (there are more than 400 of them).  Without a diagnosis the underlying physical brain issues can often be overlooked or misunderstood.  Awareness and support for those with FASD in Hertfordshire is growing.  We seek to work cooperatively with all relevant structures to help create a more caring environment for people and families struggling for diagnosis and support.

This list is a work in progress we are developing at the request of our support group members.  Please send us information and help us develop this list further.  Inclusion or exclusion on this list is not intended as a statement of the quality of services provided. Our hope is that someday this list will be very long indeed.

Many families continue to encounter problems in our area in seeking diagnosis as   there are no paediatricians in East Herts & area who are commissioned to provide FASD diagnosis.  This is clearly unacceptable, given the estimates that there may be as many as 3-6% of children born each year with FASD.  Our group is seeking to work with local structures to change this.  We list below paediatricians who have experience with FASD, but this does not mean they will be able to see all children at this time.